Privacy Policy

Privacy Notice

The Cancer Patient Education Network (CPEN) is committed to protecting the privacy of all members and guests who visit the CPEN website. This policy was developed in the interest of protecting that privacy. CPEN adheres to all federal laws and the EU GDPR. The CPEN website collects data only to better serve members and other users of our website. This policy applies only to CPEN’s website,  It does not apply to the websites of any member or to any websites operated by organizations or groups who associate themselves with CPEN, nor does it apply to any websites featuring links to the CPEN website.  Our privacy policy does not apply to the practices of organizations or persons not owned, controlled, managed or employed by CPEN.  This policy will be periodically reexamined as technology, business and legal requirements change.

Please regularly review our Privacy Policy. If you have objections to the Privacy Policy, you should immediately discontinue use of the CPEN website. This Privacy Policy does not govern privacy practices associated with offline activities, websites other than, or any products or services not available or enabled via the CPEN website. By using our website, you consent to the data practices described in this Privacy Policy. If you do not agree with the data practices described in this Privacy Policy, you should not use our website.

Collection of general data and information

When you browse the CPEN website without an account, you are anonymous. Account creation is voluntary and application for membership is voluntary. CPEN does not collect personal information about any person that is not provided voluntarily.

The CPEN website collects a series of general data and information when a user or automated system visits the website. This general data and information are stored in the server log files. Collected may be (1) the browser types and versions used, (2) the operating system used by the accessing system, (3) the website from which an accessing system reaches our website (so-called referrers), (4) the sub-websites, (5) the date and time of access to the Internet site, (6) an Internet protocol address (IP address), (7) the Internet service provider of the accessing system, and (8) any other similar data and information that may be used in the event of attacks on our information technology systems.

When using these general data and information, CPEN does not draw any conclusions about the data subject. Rather, this information is needed to (1) deliver the content of our website correctly, (2) optimize the content of our website as well as its advertisement, (3) ensure the long-term viability of our information technology systems and website technology, and (4) provide law enforcement authorities with the information necessary for criminal prosecution in case of a cyber-attack. Therefore, the CPEN website analyzes anonymously collected data and information statistically, with the aim of increasing the data protection and data security of our enterprise, and to ensure an optimal level of protection for the personal data we process. The anonymous data of the server log files are stored separately from all personal data provided by a data subject.

Collection of Personal Information

CPEN captures individual information, including contact information and demographics for the purpose of doing business with CPEN, including: membership, store purchases, education and research, event attendance, continuing education credits, subscriptions, and other services. To gain access to members-only areas and personalized features or to make purchases on the CPEN website, users must create an CPEN account and provide individual information. If the user selects to opt-in, information submitted online may be used for other CPEN marketing uses, such as email and mail notifications of upcoming events that match the interests provided us. This information is submitted voluntarily.

Do not provide personal information about others unless you are authorized or required to do so by applicable law or contract. Before supplying personal information about others, you and the person about whom you supply the information must review and consent to the Terms of Use and Privacy Policy of the Website. By submitting any personal information about others, you represent and warrant that you are authorized to do so, that you have made the Terms of Use and Privacy Policy available to the person about whom you supply the information, and that you have obtained that person’s written consent to our Terms of Use and Privacy Policy. If applicable law allows you to supply the information without doing the foregoing, you represent and warrant that you have abided by that law and that it allows us to receive and disclose the information under this Privacy Policy without any further action on our part. You agree to indemnify, defend and hold harmless CPEN, our parents, subsidiaries, officers, directors, employees and agents, sponsors and supporting artists, licensors and suppliers for any failure by you to comply with this paragraph.

If you apply for membership, register for training or a conference, or request any other product or service, CPEN collects information from you such as your name, title, company, address, phone, fax, e-mail address and professional discipline/interest.  This information is collected only if you give it voluntarily.  Information provided to CPEN will be used internally to process your specific request and will not be sold or shared with outside parties.  Your information may be used to send you CPEN publications, information relating to upcoming CPEN activities or important membership announcements. In addition, CPEN makes members’ contact information available to other members through the Members-only website.  This information can only be accessed with a legitimate CPEN username and password; for this reason, we strongly urge you limit unauthorized access to your CPEN username and password.  You may edit your contact information at any time through your account on the website.  If you have difficulty editing your information online, you may update it by calling or e-mailing CPEN headquarters at +1.434.284.4697 or

Points of Consent

Select All Mailings

  • Membership
  • Meetings and Events
  • CPEN Update e-newsletter
  • Webinars
  • Surveys


Maximize your knowledge of CPEN membership by keeping up to date on new member benefits, volunteer opportunities, Committee and Special Interest Group activities, awards, and more!

CPEN Update e-newsletter

CPEN Update e-newsletters are published four times per year and offer feature articles on cancer patient education topics and updates on the activities of CPEN Committees and Special Interest Groups. The e-newsletter is available to members only.

News Announcements

Stay informed of news and developments impacting our field.

Meetings and Events

Receive news and updates regarding the International Cancer Education Conference.

CPEN Connections Webinars

Stay up-to-date on CPEN Connections webinar opportunities.


Assist CPEN by participating in occasional surveys to help us gauge trends in our field and share your feedback on your experiences with CPEN programs and events.

Unsubscribe from all. Please note that you will continue to receive transactional mailings such as receipts, confirmations, and invoices.

Disclosures to Third Parties

CPEN does not sell or rent your personal information to anyone except when:

  • We have your opt-in consent to share the information;
  • We need to share your information to provide the product or service you requested; or
  • We need to send the information to companies working on behalf of CPEN to provide a product or service.

Companies that receive personal information from CPEN to execute the businesses of CPEN may use personal information to complete to service they have been contracted to perform, and they are prohibited from using the information provided for any other purpose.

CPEN also makes members’ names and business contact information available to other members on the CPEN website via the online Member Directory. Members may request that information is blocked from the online Member Directory through the Account Preferences page of this website or by emailing

CPEN may disclose your information if we are required to do so by law or if such disclosure is necessary to comply with a legal order; defend CPEN or its employees, affiliates or partners; or protect the personal safety of CPEN, affiliates, partners, members or site users.

Credit Card Information

You may choose to provide CPEN with credit card information to pay for membership dues, training or conference registration fees, or any other product or service. We will never voluntarily disclose your credit card information to any third party organization or person who is not employed or contracted by CPEN to process your payment. CPEN does not capture credit card account information online from purchases. Credit card payments are processed directly through a certified processor (i.e., PayPal).


CPEN has taken measures to protect the loss, misuse, and alteration of information on this website. We have the technology in place to provide secure transmission of data to and from our website. All information (including your address and credit card information) is encrypted when submitted so that no other party can access it.

Protection of Children’s Personal Information

Our website is intended for adults, such as our members. CPEN does not knowingly collect any personal information from children under the age of 13. Please contact CPEN at if you suspect that CPEN has collected any such information.

  • Any material published on the CPEN website is protected by International Intellectual Property and Copyright laws. All text, logos, graphics, icons, photographs, software and audiovisual material fall under this protection. Permission is granted to download, copy or print material on CPEN’s website for personal, instructional or non-commercial use only.
  • The information found on the CPEN website should not be used as medical, legal, business or tax advice.
  • Our Privacy Policy may be revised occasionally. You should review it from time to time to be sure you understand the details. Using the CPEN website indicates your agreement to the Policy that is posted at the time of use.
Privacy Rights
We may retain your information for a period of time consistent with the original purpose of collection. For instance, we may retain your information during the time in which you have an account to use our websites or services and for a reasonable period of time afterward. We also may retain your information during the period of time needed for us to pursue our legitimate business interests, conduct audits, comply with our legal obligations, resolve disputes and enforce our agreements.

You may opt out of any future contacts from us at any time. Additionally, if the collection of your personal data was based on your consent, you have the right to revoke that consent at any time. Be aware that by revoking consent, you may lose access to services you previously opted to use.

You may request to review, correct, delete, or otherwise modify any of the personal information that you have previously provided to us through the CPEN website. You can do the following at any time by contacting us via the email address or phone number provided on our website:

  • See what data we have about you, if any
  • Change/correct any data we have about you
  • Have us delete any data we have about you
  • Express any concern you have about our use of your data

Requests to access, change, or delete your information will be addressed within a reasonable timeframe.

How to Contact Us

CPEN commits to resolve complaints about our collection or use of your personal information. CPEN takes its users’ privacy concerns seriously.

If you believe that CPEN has not complied with this Privacy Policy with respect to your personal information, you should first contact us at CPEN by emailing us at or by writing to the CPEN Privacy Officer at the following address:

Attn: Privacy Officer
154 Hansen Road, Suite 201
Charlottesville, VA 22911 USA

In your letter, please describe in as much detail as possible the ways in which you believe that the Privacy Policy has not been complied with. We will investigate your complaint promptly.

Website Disclaimer
  • Content provided on the CPEN website has been compiled from a variety of sources and is subject to change at any time. Links to other websites are provided for convenience and do not constitute an endorsement of the sites or the material found on them. CPEN has no control over the nature, content and availability of those sites. The inclusion of any links does not necessarily imply a recommendation or endorse the views expressed within them.
  • Any material published on the CPEN website is protected by International Intellectual Property and Copyright laws. All text, logos, graphics, icons, photographs, software and audiovisual material fall under this protection. Permission is granted to download, copy or print material on CPEN’s website for personal, instructional or non-commercial use only. The information found on the CPEN website should not be used as medical, legal, business or tax advice.
  • In no event will CPEN be liable for any loss or damage including, without limitation, indirect or consequential loss or damage, or any loss or damage whatsoever arising from loss of data or profits arising out of, or in connection with, the use of this website. Every effort is made to keep the website up and running smoothly. However, CPEN takes no responsibility for, and will not be liable for, the website being temporarily unavailable due to technical issues beyond our control. While we endeavor to keep the information up to date and correct, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the website or the information, products, services, or related graphics contained on the website for any purpose. Any reliance you place on such information is therefore strictly at your own risk.
  • While CPEN receives sponsorship from exhibitors of various companies for the annual conference and has a mechanism for corporate membership, CPEN does not have detailed knowledge of internal business activities of those companies that become corporate members or support the annual conference. Corporate membership or industry sponsorship does not constitute an endorsement on behalf of CPEN of the practices and business of individual sponsors or corporate members. If CPEN learns about confirmed unethical behavior by sponsors or members, this may be cause for termination of membership or sponsorship.
  • Cookies are text files that are stored in a computer system via an Internet browser. Cookies are commonly used by websites to make accessing that website faster and more efficient. Many organizations use cookies to track your shopping cart, for example, so that you can purchase several items or services at one time instead of having to purchase each item at the time you select it. CPEN uses cookies to monitor statistics regarding your visit to the website (such as how long you visited, what web pages you visited on our site, etc.) and to hold items in your shopping cart for you. We use "session-only" cookies, which are deleted from your computer’s memory when you close your browser window. You can set your internet browser to not accept cookies, or to ask you before accepting certain types of cookies, but this may keep you from having access to all of the benefits of the CPEN website. In most cases, a medium level of cookie security will allow you to log in to and use the CPEN site. Using cookies in this manner is standard across the majority of all websites.
  • Users may, at any time, prevent the setting of cookies through our website by means of a corresponding setting of the Internet browser used, and may thus permanently deny the setting of cookies. Furthermore, already set cookies may be deleted at any time via an Internet browser or other software programs. Please be aware that some of our services will not function if your web browser does not accept cookies. However, you can allow cookies from specific websites by making them "trusted websites" in your web browser. To learn more about the functionality of cookies, please visit This site includes instructions on how to manage your cookie settings on a wide range of browsers.